PHONE/FAX 03 9889 7924 FOLLOW US 
Royal Children’s Hospital Clinics The Royal Children’s Hospital run a PWS clinic four times each year, for infants and school aged children. At the clinic there are Paediatricians, Dietician and Endocrinologists available by appointment. A referral is required to attend the clinic. For further information contact the RCH Outpatient department on 03 9345 6180.
Prader-Willi Syndrome Register The Royal Children’s Hospital maintain a Victorian Prader-Willi Register which collects basic information about Individuals with PWS born or living in Victoria. The register is important in allowing RCH to determine the rate of PWS in Victoria and the health and behavioral effects of this condition on the individual and their families. The information will contribute to learning more about PWS in Australia and worldwide. To register your interest contact RCH on 03 9345 4562.
Professional Development Training Training and education about PWS and how to manage it can be arranged by our In-Sevices Training Manager. Contact info@pws.asn.au to organise a time and visit.
Links
Medical Information for PWS: A list every parent, and their doctor, should have.
USA - click here
UK - click here
PWS International Conferences for Professional Providers and Caregivers
click here
Autistic Spectrum in PWS
click here
Residential Best Practice Guidelines and Standards of Care
click here
Health Supervision for Children with Prader-Willi Syndrome
click here
Sexual Development
click here
