Many children with PWS attend mainstream secondary education centres. Others begin to find the curriculum too complex and they may become frustrated at not being able to keep up. To help them maintain self esteem, private and government specialist schools often become a better option during secondary schooling.
Tips • Start a good filing system at home. There are many reports and assessments of your child that you may be required to provide to schools and government agencies to support funding and other specific needs for your child.
Policy Statement: Adults With Prader-Willi Syndrome and Decisions Regarding Least Restrictive Environment and the Right To Eat: This has been formulated by the Prader-Willi Syndrome Association of USA.
Medical Information for PWS: A list every parent, and their doctor, should have.
USA - click here
Behaviour Management: This is a terrific 12 page document from the PWSA (UK) -
A guide for the General Physician (GP) and for parents and care providers of children and adults with Prader-Willi syndrome visiting the GP
DHS Disability Services: Programs, Publications, Useful Services, Links to other Services
Disability Online: Information for people with a disability, their families and carers
|The PWSA of Victoria Web Site is intended to provide information only - not to diagnose or advocate particular treatment options. The Diagnosis and treatment of Prader-Willi Syndrome should be made through a qualified medical professional. Thus, it is strongly urged that patients do not change treatment without first consulting their doctor. The inclusion of any resource or link in the PWSA of Victoria Web Site does not imply endorsement.|